Clinical friction
Some parents describe raising questions about treatment protocols and feeling shut out rather than heard. We want to understand when and why that happens.
When parents and medical teams stop hearing each other, children pay the price.
RATM Ireland — Rights, Advocacy & Tailored Medicine — is a new initiative exploring what happens when families of children with serious or rare conditions hit friction in the Irish healthcare and child protection systems. We're listening before we build.
Tell us what you've seenWHAT WE'RE HEARING
System crossover
Some families report that clinical disagreements have escalated into child protection referrals. We want to understand how often, under what circumstances, and what could be done differently.
Navigating complexity
Ireland funds precision medicine pathways, rare disease networks, and European Reference Networks — but families dealing with a diagnosis don't always know these exist or how to access them. We want to map the gap.
What we do
Peer Connection
No family should navigate a Child Protection Conference, a clinical disagreement, or a complex diagnosis without knowing others have been through it.
Clinical Rights Information
Plain-language guidance on what families are entitled to ask for — from second opinions to MAGIC-I to the National Rare Disease Strategy.
Listening first
We are in active discovery. Before we build programmes or publish positions, we want to hear directly from parents, clinicians, social workers, and legal practitioners about what's working and what isn't.
Share what you know.
Have you experienced friction between clinical care and child protection?
We're conducting short confidential conversations — 15 minutes, no identifying details recorded — with anyone who has seen these systems interact. Parents. Clinicians. Social workers. Legal practitioners. Advocates.
If you've been through it, or seen it happen, we'd like to hear from you.
Thank you. We'll be in touch within 48 hours.